Patient Resources
Keratoconus Community Networks
There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, iLink FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.
Here are a few groups you can join to participate in the conversation.
Resource List
Following is a list of resources we have assembled for current or prospective patients and their families. If you have a specific medical question, it is best to consult your physician.
Advocacy
Support Groups
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Looking for a Cross-Linking Expert?
Learn More Through KC Journeys
Playing Sports or Working Out With Keratoconus? Here’s What to Do!
One of the more common questions that we’ve seen from the Living with Keratoconus community is: Will corneal cross-linking help my vision? In this blog, we’re discussing whether iLink FDA-approved cross-linking helps improve vision, and if corrective lenses will be needed.
KC Experts: Dr. Ostrovsky on Down Syndrome, Keratoconus and the Importance of Early Detection
More than half of people with Down syndrome experience an eye disease at some point in their lives. 5-15% of people with Down syndrome are affected by keratoconus, even though it is considered a rare disease.
Patient FAQs
Discover answers to the most common questions surrounding cross-linking
Visit the Cross-Linking Section to learn more.
Top Questions to Ask Your Eye Doctor
Keratoconus
Learn more about this rare eye condition
View our Living with Keratoconus Patient Brochure.
Keratoconus
Learn more about this minimally invasive procedure
Visit the Cross-Linking Section to learn more.
Explore Our Keratoconus Infographic
Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved.”
RESOURCE: How to Navigate the Insurance Appeals Process
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