Keratoconus Journeys
Playing Sports or Working Out With Keratoconus? Here’s What to Do!
One of the more common questions that we’ve seen from the Living with Keratoconus community is: Will corneal cross-linking help my vision? In this blog, we’re discussing whether iLink FDA-approved cross-linking helps improve vision, and if corrective lenses will be needed.
KC Experts: Dr. Ostrovsky on Down Syndrome, Keratoconus and the Importance of Early Detection
More than half of people with Down syndrome experience an eye disease at some point in their lives. 5-15% of people with Down syndrome are affected by keratoconus, even though it is considered a rare disease.
Keratoconus Journey: Steven
One of the more common questions that we’ve seen from the Living with Keratoconus community is: Will corneal cross-linking help my vision? In this blog, we’re discussing whether iLink FDA-approved cross-linking helps improve vision, and if corrective lenses will be needed.
Keratoconus Journey: Jimmy
For over 40 years, Jimmy learned to live with and manage his keratoconus using a contact lens. However, as his keratoconus continued to impact his ability to remain active, the potential need for a corneal transplant became a concern. As his condition continued to progress, he knew he needed to find a treatment to preserve his vision.
Keratoconus Journey: Jackson
Jackson has had a rocky relationship with his vision for years. He tried his best to adapt to his declining vision, and even got his first pair of glasses, however his vision only continued to worsen. After struggling for over a decade, Jackson finally learned what was causing his vision issues: keratoconus.
Keratoconus Journey: Casey
Casey noticed his vision was blurry at just 15 years old. An initial diagnosis determined he had a cataract, but after undergoing the recommended corrective surgery, his vision only continued to decline.
Keratoconus Journey: Trayci
Growing up, Trayci didn’t know a life without contacts or glasses, so when she had the option to receive Lasik, she took it. However, 14 years after receiving the procedure, she once again found her vision declining.
Keratoconus Journey: Luke
Luke’s journey began at a young age. In 4th grade, he started complaining of general vision issues, including blurry and double vision. That was when he, accompanied by his parents, first visited an optometrist…
Keratoconus Journey: Joe
Although Joe had never heard of keratoconus before, after learning more about the condition, the diagnosis began to make more sense. For years he had experienced many of the symptoms, including…
Keratoconus Journey: Chris H.
Chris’ life has always revolved around baseball. But when he started to have difficulty seeing, he began looking for solutions to strikeout his vision challenges.
Keratoconus Journey: Dione
Dione had been living in a “haze” of blurry vision since she was 18 years old. She tried a variety of contact lenses hoping they would help her to see better. However, it wasn’t until 2011, when she received an unexpected diagnosis…
Keratoconus Journey: Sarah
As a small child, Sarah underwent unrelated eye surgery and wore glasses for years to correct her nearsightedness. With her complicated eye history, Sylvia was diligent about Sarah receiving alternating annual ophthalmologist…
Keratoconus Journey: Kyle L.
For nearly two decades, Kyle’s rare corneal disease slowed down the busy engineer and avid traveler. He often wondered if he would require a corneal transplant, until a fluke allergic reaction forced him to visit a corneal specialist.
Keratoconus Journey: Andre
For years, Andre wore glasses to help with his nearsightedness, but in his early 30s, he began to notice his vision getting slightly worse. As an active and inquisitive person, he wanted know more about what was causing the change…
Keratoconus Journey: Mike H.
Uncomfortable with putting contact lenses in his eyes, for years Mike opted to wear glasses to help correct his vision. Over time, Mike noticed that the glasses were no longer helping him see…
My Family’s Journey with Keratoconus
Growing up, I thought I had perfect vision. I didn’t wear glasses or contacts and my doctors never noticed anything problematic with my eyes…
Keratoconus Journey: Kenny
At the age of 32, Kenny’s optometrist told him his vision was rapidly deteriorating, but his fear of eye drops, contacts, and medical procedures stopped him from visiting a specialist…
Keratoconus Journey: Brent
Brent is not known for slowing down when things get tough. As a personal trainer, he tends to power through. He’s accustomed to encouraging his clients to do the same, but when he began having trouble…
Keratoconus Journey: Baylen
In 5th grade, Baylen started wearing a contact lens in his left eye to correct for his nearsightedness. While the contact seemed to manage the vision issues he was facing at the time, it wasn’t until…
Keratoconus Journey: Adam
When he had first heard of cross-linking, Adam was initially terrified. However, he knew that he could no longer put up with the pain and frustration of dealing with contact lenses…
Keratoconus Journey: Dan
In his early teens, Dan first began noticing a minor change in his vision but assumed it was nothing serious, since it wasn’t affecting his daily life. His vision never impacted his studies…
Keratoconus Journey: Bekah
Bekah went to her local Department of Motor Vehicles (DMV) near Austin, Texas, to renew her expiring driver’s license, but she didn’t expect what would happen next…
Keratoconus Journey: Nishi
In November 2016, about seven months after cross-linking became FDA approved and over two years after her initial diagnosis, Nishi received the procedure in her left eye…
Keratoconus Journey: Gage
With the help of his doctors and corneal cross-linking, Gage is happy to be living on campus and being able to experience college the way he had always envisioned…
Keratoconus Journey: Nic
As an airplane mechanic, Nic depends on his eyesight to inspect and repair airplanes. However, when his vision began to fail, he needed to find a “fix” for that as well…
Keratoconus Journey: Joseph
I was familiar with keratoconus growing up. My mother struggled with the condition for years, using different contact lenses and glasses with little success. Ultimately, she elected…
Keratoconus Journey: Danny
As a Manhattan TV producer, Danny relies on his vision to story produce episodes of reality TV. However, it is not surprising that even someone who is known for having a “good eye”…
Keratoconus Journey: Aaron
Aaron was an active teen growing up. He participated in many sports despite wearing thick glasses to see clearly. As a high school varsity football player, Aaron’s teammates often teased him…
Keratoconus Journey: Brandon
Now that he can see clearly again, Baltimore Ravens defensive tackle Brandon Williams is ready to resume his lucrative NFL career. Williams has an eye disease called keratoconus…
Keratoconus Journey: Dr. Eric
As a pathologist (a physician who studies the cause, origin and nature of disease), Dr. Eric’s profession depends on spotting warning signs that can impact his patients’ health…
Keratoconus Journey: Shanice
Growing up, Shanice was a talented athlete who dreamed of competing at the highest level of sports. In high school she was a standout player, eventually winning a scholarship…
Keratoconus Journey: Cedric
Considered a “failure to thrive” infant when he was born, Cedric was only given a 10% chance to live by his doctors. Cedric was taken in by one of his attending nurses who made him a part…
Keratoconus Journey: Kiana
Kiana’s struggle with her vision began during her senior year of high school in Boston, Massachusetts. Instead of looking forward to her future, Kiana found herself experiencing troublesome…
Keratoconus Journey: Amritpal
Amritpal’s interest in the field of eye health began with a personal battle to preserve his own vision. In 2014, Amritpal was taking a simple vision exam during his driver’s test when he discovered…
Keratoconus Journey: Thomas
Growing up, Thomas relied on his 20/20 vision to participate in athletics and extra curricular activities, with baseball as the sport in which he truly excelled. Although he received regular check-ups…
Keratoconus Journey: Jessa
When Jessa was in eighth grade she began to experience difficulties with her vision. While she had worn contact lenses for a few years, some things began to look “funny” and out of focus. Jessa’s…
Keratoconus Journey: Richard
Richard knew that something was wrong with his vision when he began to experience constant headaches while reading. One morning, Richard woke up to find his vision had noticeably worsened…
Keratoconus Journey: Max
Max was just a typical 15-year-old from Columbus, Ohio when his eye health changed forever. It started with a routine optometrist visit with his older sister, Morgan, to pick up a new…




































